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Helpful Advice

Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!

Can you share your tips for getting used to ostomy life?

This for me is most important. Connecting with other ostomates is what got me through the first few months of ostomy life. I already had a son who’s ostomy I had been managing for 5 years. Despite this, I found having one myself completely different. When I woke from surgery I was almost repulsed by my stoma. That may sound extreme and believe me when I say I am not averse to stomas, they save lives and I asked for stoma surgery. Yet my initial reaction was to be horrified.

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Christmas food with a stoma

With Christmas being so close (it's Christmas Day in just a few days), it can be a time of anxiety and apprehension if you have an ostomy, especially if you're new to the ostomy world & this is your first ostomy Christmas. Daily routines change & everything gets mixed up, you forget what day it is & can find the changes hard, especially trying to navigate them with a stoma.

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What are 5 common ostomy challenges?

Whether you're new to ostomy life or whether you've had an ostomy for a few years, several years or more, it's normal to come across things that you may find a little more difficult to navigate. It's also normal to also find some things challenge. Not everyone experiences the same challenges but at the same time, no ostomy is the same from person to person. Everyone experiences ostomy life differently.

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Dealing with winter colds with an ostomy

Winter brings about many changes, some welcome, some not so much. I love nothing more than lighting every candle in the house, my twinkly tree on, the dark nights and watching GoggleBox on the telly under a throw with the family. But what does it mean for us ostomates? As we all know, we are all so different in the reason why we got a ticket to the club, and what impact that has on our wider health. For some the arrival of Winter may not change that much, for others it can present the need to adapt and tweak a few different things. 

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What is in your 'on the go' ostomy kit?

You are sore and perhaps bloated from surgery, not feeling quite like yourself. You may be relying on medication, and testing your food tolerances with your new accessory to see what you can and can’t tolerate. With all this in mind, what seemed as simple as going out to catch up with a friend over coffee can bring up many questions: What toilet facilities are there? Do I need a radar key if I need disabled toilet facilities? Will I need to empty my bag there? (You may not have done this in public yet) What happens if my bag leaks and needs changing? Can I have caffeine?

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How do you clean your ostomy?

It is easy to assume when an ostomy is concerned that it is a messy, dirty situation for those involved! Unless you are not getting on with your ostomy appliance, that simply shouldn’t be the case at all (apart from a leak of course). Keeping your ostomy clean is not only best for you practically whilst you carry on with your day to day life, but as important as your daily hygiene. Your ostomy should be kept clean just as the rest of your body. Put simply, your ostomy is your anus that’s had a visit from Phil and Kirsty and relocated up north!

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