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Hirschsprungs disease

Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!

5 things being an ambassador for Pelican Healthcare has taught me...

When asked by Pelican to be an ambassador I had been sharing our story for 4 years already. I started my page on Instagram @gutsy.mum with the aim of reaching anyone that may stumble on my page and feel like they are the only ones. Being an ambassador has brought with it so many wonderful opportunities, and for that I am so grateful for. I have learnt some lessons along the way too.

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Wedding Day Support Wear

As the wedding season began and the backlog of weddings put on hold due to Covid starting to fill the diaries, I was honoured to be Maid of Honour for my best friend. We have been friends over half our lives, met in school and as the old saying goes, the rest is history. Weddings are an exciting occasion for anyone, but when it's for someone as close to your heart as this, it means so much more.

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Friendship and acceptance

I am rather a sociable being and love the bones of my friends. Having a poorly child will show you very quickly who the real ones are, the ones that reach out. The ones that have the difficult conversations then entertain your anxieties and dramatics in times of hardship. Child-care has always been an achilles heal for us with a child with both an ostomy and a feeding tube. Friends over the years have offered to learn how to change a stoma bag to be able to baby sit, but to put that responsibility onto someone is huge, and one that shouldn’t be taken lightly. From our perspective, we wouldn’t dream of asking someone who has a newborn, a younger...

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Eating Disorders Awareness Week

Did you know that GP’s in the UK get less than 2 hours training on eating disorders in their medical degree (sourced here)? It’s simply inconceivable. The topic of eating disorders was something I never had to give much thought about until I had my son, yet now it consumes most of my thoughts. Eating disorders awareness week is a chance to share our stories and connect with like minded people.

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Podcast Playlist

Podcasts are undoubtably a brilliant form of self care. Putting those headphones in and escaping from the outside world, you can curate what you need in that moment. I listen mostly when I am doing something arduous like making dinner, ironing or running a long distance. In this blog I am sharing some of my favourites, covering a varied spectrum of topics. These topics serve me well through education, mindfulness and laughter. If you have any recommendations don’t hesitate to message me over on Instagram @gutsymum I would love to hear what you listen to! The POODCAST @the_poodcast Now this is one for the drive home where after a long and stressful day, you literally need to laugh out loud....

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Running With A Stoma - The Race Edition

October was a very special time for me as I entered my first 10K race in Cardiff, South Wales. Whatever possessed me to do it you ask? How many of you who are reading this with a chronic illness have found they can’t be as active as they once were? For me it was like a light switch was flicked and I couldn’t do anything without being in pain anymore. Its debilitating, demoralising and can lead you down a dark path mentally with the mental health benefits you loose over night. My health journey has been quite the fair ground ride. Born with Hirschsprungs Disease, multiple surgeries, 3 stomas and having a child which has the same yet more severely,...

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World Ostomy Day 2021

It feels like it was only yesterday that my Instagram feed was glittered with beautiful photos of ostomates across the world, showing what World Ostomy Day means to them. For most of us who use the platform to document their journey living with an ostomy, its a daily occurrence, yet what is it about World Ostomy Day that makes it that much more special? I’ll share with you what it means to me. It means seeing everyone the same as me, rocking their bag, being raw and relatable, sharing the positives and the negatives. I feel seen. I feel my five year old ostomate is seen. That is the power of this day. It doesn’t make the content shared less...

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Holidaying as an ostomate

I’m back again guys following a lovely holiday with my family! We have always stayed in the UK since we had our baby ostomate now 5 years old, so current circumstances haven’t made any difference to us choosing to visit the beautiful Exmouth in Devon. Despite a few wet days at the start, parts of the UK entered a heatwave with temperatures entering late 20s/early 30s. This was my first holiday as an ostomate, but going on staycations for five years with my little one Jake meant you would think there wouldn’t be many surprises. I felt pretty organised with the only difference being myself to care for during bag leaks, hoping that Jakes stoma didn’t feel left out and...

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A mothers mental health - the baby ostomate edition

I started blogging about having a little one with a stoma in 2016. I used Instagram as a platform to share my story in the hope of helping in the way many had for me by sharing the highs and the lows of having a baby with Hirschsprungs Disease. The bowel disease which affects 1 in 5000 babies a year in the UK, is caused by the nerve cells in the intestines needed to move stool along into the rectum for toileting (known as ganglion cells) not being present. This causes the body unable to remove its own waste, with the tummy starting to distend and very little to no poo being passed. Surgery is essential with bowel washouts required...

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