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Ostomy Education

Whether you're new to ostomy life or whether you've had an ostomy for a few years, several years or more, it's normal to come across things that you may find a little more difficult to navigate. It's also normal to also find some things challenge. Not everyone experiences the same challenges but at the same time, no ostomy is the same from person to person. Everyone experiences ostomy life differently.

A stoma is considered to be prolapsed when the bowel protrudes to a larger extent than anticipated. This can vary for the individual, anything from a few centimetres to more than ten. Experiencing a stoma prolapse can be distressing and hard to come to terms with, however, it is usually not said to be serious. An ostomy prolapse must be looked at by a medical professional such as a stoma nurse. A larger bag or larger ostomy bag hole may be needed, for example, to account for the prolapse.

Having ostomy surgery can understandably be a daunting prospect and it's perfectly normal to feel scared & unsure.  Today, we would like to be myth-busters (move aside, Ghostbusters) and take you through some of the below myths to reassure you.

Hot weather - you either love it or hate it! However, if you have an ostomy, it can cause problems. Hot weather can and does cause problems in ostomy life, but everybody is different and is affected to different extents. Knowing how to handle hot weather with an ostomy and how you may need to adapt your daily routine definitely helps and also enables you to feel more in control. Read on for some tips to help make the heat more bearable!

If you are new to the ostomy community, one of the first questions that may be on your mind is ‘how long will my stoma bag last?’. Unfortunately there is no definite answer (annoying I know sorry!). It should be changed when needed, preferably before you have a leakage starting and not so long that you see your baseplate start to give way. As you get into a rhythm of your stoma routine, and you establish when it is safe and comfortable for you to change it, it will become as automatic as getting up and brushing your teeth in the morning.   

Whether you're new or experienced in ostomy life, a question you may not know the answer to is "what are the stickers for that come with ostomy bags?" We asked our Social Media & Marketing Specialist, Amy, who has had her permanent ileostomy since 2011, if she knows what the stickers are for and to our delight, she did, but admitted that it took her a good few years until she found out what they are for.

There are many possible reasons why a child may need a stoma. In this blog post, I look into some of those reasons. Without further ado, let's get started.  1. Hirschsprungs Disease - This reason had to be number 1 as it's what my brave little man inherited from myself, the reason for our ostomies. Born with non functioning colons we needed them completely removed along with 3cm of small intestine

When we discuss ostomies in this post, we will be referring to either an ileostomy, colostomy or urostomy. It is important to note that every individual who needs ostomy surgery is different, so every story and need for surgery is very personal to that individual. No two stories are the same.

Let's start this post by saying that drinking alcohol with an ostomy is not the same for everybody, as is the case with a lot of things in ostomy life. It is also different depending on which ostomy you have - ileostomy, colostomy or urostomy.

The person who is most aware of your ostomy's smell is you.  Also, it is normal to smell your ostomy output and gas when you are changing your ostomy bag. As you would if you went to the toilet the standard way to poo, it's natural for it to have a smell... After all, it is waste from your digestive system!