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Ostomy Parents

Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!

What would you have written to your child before their ostomy surgery?

My beautiful boy, you have a long road ahead. You were born with the strength of a warrior and the fight to overcome more than most do in their whole lives within the first few years of life. You need stoma surgery like Mummy did when she was born. The word stoma is the opening made in the tummy to divert stool out of the intestine. It is like a rose bud sitting proudly on top of your skin. It moves sometimes like a wriggly worm and can be a bit naughty and poop when you don’t want it too.

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What is going on holiday like with a stoma?

Travelling feels like such a luxury after the last two years. I am eagerly awaiting my family holiday with the family and can’t wait for my toes to touch the sand and feel the salty sea air on my skin. Is there anything better? Fish and chips at the seaside, the kids playing outside care free, and that dreaded morning alarm set too silent. If you have kids it won’t make much different mind! But, just being able to turn it off feels so rebellious! Packing for a family is a task in itself. Inevitably something will get left, and if you are like me you will have to buy more sun-cream as you leave it at the beach or...

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Friendship and acceptance

I am rather a sociable being and love the bones of my friends. Having a poorly child will show you very quickly who the real ones are, the ones that reach out. The ones that have the difficult conversations then entertain your anxieties and dramatics in times of hardship. Child-care has always been an achilles heal for us with a child with both an ostomy and a feeding tube. Friends over the years have offered to learn how to change a stoma bag to be able to baby sit, but to put that responsibility onto someone is huge, and one that shouldn’t be taken lightly. From our perspective, we wouldn’t dream of asking someone who has a newborn, a younger...

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Eating Disorders Awareness Week

Did you know that GP’s in the UK get less than 2 hours training on eating disorders in their medical degree (sourced here)? It’s simply inconceivable. The topic of eating disorders was something I never had to give much thought about until I had my son, yet now it consumes most of my thoughts. Eating disorders awareness week is a chance to share our stories and connect with like minded people.

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