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Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!
Christmas time can feel overwhelming for a lot of people at the best of times, then there's adding an ostomy into the mix! It's fair to say that you are not alone if you are worried about navigating Christmas, but thankfully, there are some top tips in this post from fellow ostomates...
Crohn's & the SCD Protocol
When our son was diagnosed with Crohn's disease at the age of thirteen, my initial reaction was one of fear, what would this mean for him, how would his life change? Then disbelief, how could this be happening to our previously super healthy, athletic son? Then guilt, was it something I’d done to cause him to develop Crohn's, was it genetic or lifestyle, could I have done something different to protect him from this wretched disease?
What priceless things are on your Christmas wish list as an ostomate?
As Christmas draws near (where has that year gone?!), for a lot of people, it's not about wanting material things for Christmas. It's about time with loved ones, making memories and for some, it's even wishing for things that money can't buy or even wishing for things that don't exist.
On that note, Amy is going to tell you what 5 things she would put on her Christmas list as an ostomate.
Dealing with winter colds with an ostomy
Winter brings about many changes, some welcome, some not so much. I love nothing more than lighting every candle in the house, my twinkly tree on, the dark nights and watching GoggleBox on the telly under a throw with the family. But what does it mean for us ostomates? As we all know, we are all so different in the reason why we got a ticket to the club, and what impact that has on our wider health. For some the arrival of Winter may not change that much, for others it can present the need to adapt and tweak a few different things.
Osto-myth busting this Halloween!
Having ostomy surgery can understandably be a daunting prospect and it's perfectly normal to feel scared & unsure.
Today, we would like to be myth-busters (move aside, Ghostbusters) and take you through some of the below myths to reassure you.
What is in your 'on the go' ostomy kit?
You are sore and perhaps bloated from surgery, not feeling quite like yourself. You may be relying on medication, and testing your food tolerances with your new accessory to see what you can and can’t tolerate. With all this in mind, what seemed as simple as going out to catch up with a friend over coffee can bring up many questions:
What toilet facilities are there?
Do I need a radar key if I need disabled toilet facilities?
Will I need to empty my bag there? (You may not have done this in public yet)
What happens if my bag leaks and needs changing?
Can I have caffeine?
5 gut-warming recipes for ostomates
It's getting colder in the UK, which means thinking of ways to keep warm and cosy again!
One great way to do this, which is also beneficial to your body, is by cooking something warming and nutritious.
Like everything in life and especially ostomy life, it's important to remember that everybody is different. The following recipes and blog post should be taken into account with your personal needs and dietary requirements in mind.
How does accessibility impact people?
Accessibility is something that those with an invisible illness can find challenging. Whether it be accessing a building, funding, benefits or services online, for me it can feel exhausting that you have to prove it constantly. All too many times in the ostomy community, we see stories about ostomates who have been denied access to leisure facilities, or questioned for their use of disabled toilets.
What is the best way to sleep with a stoma?
One of the most common questions as you start to adapt to life with a stoma is "what is the best way to sleep with a stoma?"
Especially if you were a stomach sleeper before your surgery, even doing something so natural as sleeping can seem quite the challenge! Add hospital nights with beeping machines and being woken up what seemed like a zillion times to get your blood pressure checked and even getting back into some sort of sleeping routine can often take a good while.
Can you go to a spa with an ostomy?
This month I was lucky enough to win a spa day competition! You know when you get tagged in a million competitions by certain friends, well I can tell you its totally worth it! Its something as an ostomate that can feel quite daunting going to a spa. You may have worries about what swimwear to use, what treatments you would feel comfortable having, and how much you need to disclose.