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Helpful Advice
Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!
Podcasts are undoubtably a brilliant form of self care. Putting those headphones in and escaping from the outside world, you can curate what you need in that moment. I listen mostly when I am doing something arduous like making dinner, ironing or running a long distance. In this blog I am sharing some of my favourites, covering a varied spectrum of topics.
Running With A Stoma - The Race Edition
October was a very special time for me as I entered my first 10K race in Cardiff, South Wales. Whatever possessed me to do it you ask? How many of you who are reading this with a chronic illness have found they can’t be as active as they once were? For me it was like a light switch was flicked and I couldn’t do anything without being in pain anymore. Its debilitating, demoralising and can lead you down a dark path mentally with the mental health benefits you loose over night. My health journey has been quite the fair ground ride.
Recycling Week 2021
Recycling is something a lot of us do on autopilot with it being part of everyday life. Not one to show my age, but I can remember during my childhood having no recycling boxes outside the house and never seeing adverts or media circulated regarding the climate crisis. Thankfully one of the advantages of our children’s generation, is that they are made much more aware and have greater understanding from a young age, giving them the tools and education to actively be a part of tackling it.
Holidaying as an ostomate
I’m back again guys following a lovely holiday with my family! We have always stayed in the UK since we had our baby ostomate now 5 years old, so current circumstances haven’t made any difference to us choosing to visit the beautiful Exmouth in Devon. Despite a few wet days at the start, parts of the UK entered a heatwave with temperatures entering late 20s/early 30s.
Navigating the world of after school activities with ALN/SEN children
As soon as your child expresses an interest in going to the same club as their best mate, the search begins to secure a taster session, work out how it will fit around your schedule, and if it is affordable. If your child doesn’t have an additional learning need or special need have you ever stopped to consider the risks in them doing it anyway?
Alex's Story
My name is Alex Bolton I'm 28. I've had Crohn's Disease since I was 14. I've had every biological medication there is. I chose to have an ileostomy in February 2019 then a sub colectomy in May 2020. After having my surgery in 2020 my Crohn's is gone, I know what good health is again. I wake up every day feeling fantastic; when you're used to feeling so poorly everyday and that's the norm, you forget what feeling good feels like and that's what my stoma "Norma" gave me, I wish I'd had the surgery 10 years ago 😊 My advice to anybody knew or existing ostomates is: Always wear your hernia belt whilst training at the gym or lifting...
Lectins Good or Bad For Your Bowels?
What are lectins? Lectins are a type of protein found in many foods, but which are difficult to digest. One of the Lectins most people have heard of is Gluten. They are a kind of built-in defence system for plants to make themselves less appetising to animals that might eat them. Also, their seeds (due to the lectins in them making them indigestible) can pass through the animal or birds digestive tract unaffected, so the animal/bird can become a good means of dispersing the seeds far and wide. Some would term lectins as an “anti-nutrient” due to the attention they have received through popular media citing lectins as the cause of obesity, chronic inflammation, GI problems, leaky gut syndrome,...
Stoma surgery expectations versus reality
I had the phone call a few weeks in advance for my ileostomy surgery last Summer during lockdown. We had to isolate as a family for 10 days and I was in no means mentally prepared. With Covid I didn’t expect to have the surgery anytime soon giving us all quite the shock! A few weeks is much more than some people get with many stomas formed as the result of an emergency surgery where patients wake up to find one without even know what a stoma is.
My J Pouch Story
Having a J Pouch can be the result of a bowel condition such as Colitis, Cancer or in my case Hirschsprungs Disease. If you know what a J Pouch is, it will probably be from either having one yourself or knowing someone that does. The surgery (restorative proctocolectomy), involves the removal of the entire colon and rectum. A J Pouch (ileo-anal pouch) is created from small intestine which is folded up along side itself giving it the ‘J’ shape.
Hiking with my ileostomy
I have always been one of those people that adores the great outdoors but not so fond of just sitting about in the garden I need to be doing something outside. Due to my multiple chronic health conditions I always had some anxiety in the back of my head regarding solo treks; this year I decided to break that fear and go off by myself, don’t get me wrong having Kobe helps plus the odd friend who will join me on occasion too. Having an ileostomy certainly hasn’t stopped me from going off and enjoying myself.