Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!

Hirschsprungs Disease Awareness

When you think of reasons for a stoma bag what comes to mind? IBD, Crohn’s or Colitis are some of the first, but have you heard of Hirschsprungs Disease? Presenting in 1 in 5000 babies a year in the UK, this rare bowel disease is a birth defect that can occur with no family history of the disease. The nerve cells that line the intestines that are needed to move stool along into the rectum for toileting (known as ganglion cells), are not present. Your intestines should rhythmically move stool along in a wave-like contraction which when failing to do so cause tummy distention and constipation.

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Home Schooling and Ostomies

Did you think that your ostomy may help you with home schooling your kids? Nope well it can do!! Ra-Ra is learning about the human body right now; more specifically the organs, so what better way to talk a bit more about ostomies (and poop and pee) than during this topic. We have a whatsapp group amongst the mums in our year group to help give each other ideas etc and one mum is a flipping genius she got some wallpaper and drew round her son on the back and had him draw on the organs from his encylopedia. Now I didn’t have any wallpaper but we had some fax style paper which I luckily had enough to draw round...

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