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Lifestyle
Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!
Seeing your child ill, whatever age, is never easy.
As a mother, I felt I'd failed Amy, It was my fault she was born with this illness.
Amy had frequent problems which intensified as she started Junior School.
She had school work sent home many times as she was so weak she couldn't attend her classes.
Valentine's: Relationships & dating with a stoma
Dating has been something that has always been a worry for me, even before I had my stoma surgery in 2011.
Having Crohn’s Disease, frequent accidents, wind & a lot of pain meant that I never felt super confident with dating or intimacy, but it was something I always pushed past because Crohn’s wasn’t going to take everything from me or leave me powerless, no matter how hard it tried.
I’ve been in several relationships in my life & seen people in between for a few dates which haven’t gone anywhere. I’ve been on dating apps, met people online, met people through school and common interests & also through friends.
Medical Autonomy
I have written many times on my personal blog and on here about the fact you don’t have to keep using the same ostomy appliance as you were sent home with from hospital. You don’t have to stick with any bag etc that doesn’t suit your needs and there most certainly is a bag out there for everyone! Sometimes we just have to look a little harder for them. I am having issues with peristomal skin and leaks; the leaks are causing contact dermatitis and I am having a really crappy time with it all if you can excuse the pun. My stoma nurse has been fantastic sending me samples, doing house calls and thinking about me after hours and...
National Hug Day - 5 ways to send an invisible hug in lockdown
Today is National Hug Day. For nearly a year now, like so many of us, I’ve missed being able to hug loved ones. Being able to hug boosts people in so many ways & does so much for a lot of people mentally. Although I completely understand why we can’t and it’s better to be safe, it’s also okay to be sad at the fact that we can’t. Things are definitely feeling strained and difficult again at the moment. Throw not being able to hug people in the mix which often helps me when I’m feeling low and it can get overbearing. Thankfully, there are other things that you can do, especially in the current climate, to make someone’s day....
Why Disease Made Me Feel Dirty
Inflammatory Bowel Disease for me growing up came with its own stigma other than the taboo of being primarily a poo related disease and that is put plainly the word disease. According to the Oxford dictionary the word disease is defined as: Noun “A disorder of structure or function in a human, animal, or plant, especially one that produces specific symptoms or that affects a specific location and is not simply a direct result of a physical injury”. I got sick at the age of 10 and was diagnosed around the age of 12 with Ulcerative Colitis and there has been so many parts of growing up chronically sick that were difficult; but there was one thing that really was...
Fizzy fesitivies: Can I drink alcohol with a stoma?
Like I said in my last blog post, Christmas 2020 is definitely going to be one of a kind (not in the way we want for sure – but hopefully we can all stay safe!) I don’t know about you, but I’ll definitely be indulging in a glass of gin, wine, prosecco or two this Christmas. Let’s start by saying that I am in no way a big drinker. I never have been and never will be. I do however enjoy a drink when my body allows it & I’m definitely partial to a glass of gin and lemonade. My current gin is Whitley Neil Blackberry & it is delicious. I never drink alcohol on an empty stomach and always...
Christmas Time with a Stoma
Christmas 2020 is going to be different… That goes without saying! Having a stoma at Christmas can also be a journey to navigate. This post will hopefully give you some hints for getting through the changes that the Christmas period can bring, whether new or well bedded in to stoma life! Staying away from home This Christmas may not fall into this category with the “bubbles” being in place & guidelines for the clinically vulnerable, but hopefully these are pointers that can be used for Christmas’s to come either way. You may feel nervous and apprehensive if you are staying away from home, or have loved ones over to stay that may not know too much about your stoma journey....
3/12/20 International Day of Persons with Disabilities: Does my stoma mean I'm disabled?
Whether an invisible or visible disability, this question is something that understandably sparks a lot of thought, discussion & personal reasons for the individual. The views you will read in this article are mine only so please remember this is just how I see it. They are not medical guidance or otherwise and I am not speaking on behalf of those with disabilities. Everyone has their own views. As always, please consult a medical professional or legal professional for help with the things in this blog post before acting upon them. This blog post is merely how I interpret things combined with my experience of living with Inflammatory Bowel Disease (IBD) & a permanent ileostomy. What defines “disability?” Under the...
Comfizz Story by co-founder Lorraine Alikhanizadeh BSC hons, PGDip SRD
“When I grow up, I want to do something that helps people” that is what I used to say to my young self. I did not know exactly what that would look like, never imagined it would be in the form of support wear, but here we are. It started with Sportswear The original Comfizz established 1998 was a sports and Leisure wear company, one of the first to bring ‘performance base layers’ to the UK. My husband, Nozar, ran the company initially from home with just one designer to help him. Then came the bowel disease The Comfizz you see today specialising in medical support wear emerged in 2004 when my dad Ernie, who had been battling with Ulcerative...
Why Support Wear Is Vital After Surgery
So you’ve had your stoma surgery and you’re well on the way to making a full recovery and getting back to normal life, normal life being pretty much whatever you did before your illness but with a few differences. Apart from the obvious mechanical changes your stoma imposes, there’s not much that you can’t do, that you could do before your surgery, provided you take the right measures to reduce your risk of developing a parastomal hernia. The literature shows that over 50% of those with a stoma will go on to develop a hernia within the first two years after surgery (Boyles 2010. McGrath et al 2006, Thompson 2008). What exactly is a parastomal hernia? When a stoma is...