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I like many people who have had multiple surgeries live with scar tissue or adhesions and sometimes they go varying lengths of time without having pain or on the other hand having loads of pain. This is something I have to deal with a lot but there has been times where it is worse than others; and I have been recording when I find the pain to be more unbareable than others and weirdly I have found it to be around the time I ovulate. Having periods after having my tubes tied is even more irritating than just having them in general.  When Button was born the horror of a surgeon told me my left ovary was missing and claimed...

Invisible disabilities awareness week this year runs from October 18th to the 24th and the idea behind it is to educate people that not all disabilities are visible and we that what you see isn't always what you get! Other's use the phrase don't judge a book by it's cover or you don't know what goes on behind closed doors.  Very few people unless they see my stoma actually accept that I am ill; all of my other conditions because people can't see them they don't exist and a lot of people forget that I have limitations. I try and act as normal as I possibly can but by the time evening rolls around I'm absolutely knackered; it's even worse...

On the 1st of October I went in for my lignocade infusion to help with multiple conditions I have that cause me chronic and total body pain. When I had originally got the appointment the hospital I would be receiving treatment; at had no covid patients and I was relieved. Then the week of the appointment the hospital had a t least 25 patients and the anxiety really started to set in. I have friends that work on wards in the sister hospital letting me know they were covid free if I could swap to that one. In reality I wouldn’t have been able to get Ra-Ra to school and Button to nursery then drive 20 miles to the hospital...

It’s important to remember that Crohn’s Disease affects everyone in different ways and different severities. Some medication that doesn’t help one person may really benefit the other and vice versa. There is no “one size fits all” approach for treating Crohn’s and unfortunately no way of predicting which treatments may be successful or not.

Today is world mental health day and I just want to say I am not okay. I don’t need to share with you pictures of me at my lowest because that was last year and I managed to write to you all every week and pretend everything is okay. That’s what we do isn’t it? Fake it till we make it? Social media is full of unhappy people trying to make other people think they are happy or that their life is perfect. Perfection is in the eye of the beholder. Take my life for example…. If you take out the fact I’m ill give or take always have been and will always be ill, the fact 00Steve is always...

One of your biggest questions before diagnosis may well be "what tests are done for Crohn's Disease?" It is important to understand, no matter how frustrating it may be, that some questions may take a considerable time to have answers to & some questions may not always have clear answers.

Tomorrow is World Ostomy Day and I just wanted to take a minute to talk about what it has been like for me over the last 4.5 years of having a stoma both the good, the bad and the ugly. This is by far my favourite image because falling pregnant with Button was just such an uncertainty especially after losing Bean just a few months before; knowing I could get to this stage in pregnancy was so amazing and also terrifying as anything can happen with pregnancy.  My ileostomy has given me so many opportunities that I couldn't have dreamed about such as: falling pregnant twice even if Bean didn't make it they gave us hope being able to run...

As you may have seen in last weeks post about Ostomy Surgery Appointments and how COVID had messed them about you may remember I said I would keep you updated on it. Well obviously my appointment hasn’t happened yet as it isn’t until December but it doesn’t mean it isn’t playing heavily on my mind. It isn’t something I like talking about being wary of surgery which in itself is entirely stupid as it shouldn’t matter if I am an advocate for positively (most of the time) living with an ostomy I am still human and I am allowed to worry and heck even be scared. No doubt some of it will be completely inconsequential  or just stupid vain stuff; but regardless...

So I have mentioned before that I may have to have further surgery on my ileostomy as it has retracted a fair bit and causes me a lot of hassle in my day to day like which is draining mentally and physically. This was originally mentioned back in November last year and was only briefly touched upon as due to surgical emergencies my appointment was running really late and I had to catch a bus. I have been ruminating on this since then and I was originally supposed to have had an appointment at the beginning of March to discuss everything. As we all know far too well the global pandemic of COVID – 19 happened and soon put a stop...

It is important to remember first & foremost with any health worry to get it checked out. If you have something abnormal, the best thing to do is to seek medical advice. You know your own body better than most. Some symptoms of Crohn’s Disease can also be symptoms of other things, from Ulcerative Colitis to intestinal blockages unrelated to chronic inflammation, so it is important to get the right medical diagnosis. Not everyone’s Inflammatory Bowel Disease (IBD) diagnosis is straight forward or quick, so generally the earlier you get something looked into the better. The tests and examinations to determine what it is and how to treat it can vary from different doctors & specialists, but there are some...