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Learn with Comfizz

Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!

Alex's Story

Alex's Story

My name is Alex Bolton I'm 28. I've had Crohn's Disease since I was 14. I've had every biological medication there is. I chose to have an ileostomy in February 2019 then a sub colectomy in May 2020. After having my surgery in 2020 my Crohn's is gone, I know what good health is again. I wake up every day feeling fantastic; when you're used to feeling so poorly everyday and that's the norm, you forget what feeling good feels like and that's what my stoma "Norma" gave me, I wish I'd had the surgery 10 years ago 😊 My advice to anybody knew or existing ostomates is: Always wear your hernia belt whilst training at the gym or lifting...

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Lectins Good or Bad For Your Bowels?

Lectins Good or Bad For Your Bowels?

  What are lectins? Lectins are a type of protein found in many foods, but which are difficult to digest. One of the Lectins most people have heard of is Gluten. They are a kind of built-in defence system for plants to make themselves less appetising to animals that might eat them. Also, their seeds (due to the lectins in them making them indigestible) can pass through the animal or birds digestive tract unaffected, so the animal/bird can become a good means of dispersing the seeds far and wide. Some would term lectins as an “anti-nutrient” due to the attention they have received through popular media citing lectins as the cause of obesity, chronic inflammation, GI problems, leaky gut syndrome,...

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Stoma surgery expectations versus reality

Stoma surgery expectations versus reality

I had the phone call a few weeks in advance for my ileostomy surgery last Summer during lockdown. We had to isolate as a family for 10 days and I was in no means mentally prepared. With Covid I didn’t expect to have the surgery anytime soon giving us all quite the shock! A few weeks is much more than some people get with many stomas formed as the result of an emergency surgery where patients wake up to find one without even know what a stoma is.

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Mental Health Hospitals and Stoma’s

Mental Health Hospitals and Stoma’s

*Trigger warning: contains reference to suicide*  I have recently been admitted to hospital and for a change it wasn’t a medical ward it's for my mental health and I thought it might be interesting to share my experiences with staff who aren’t expected to know about stoma's. However I thought I would also talk a bit about hospitals in lockdown and why your mental health is important to keep on top of. I have always suffered with mental health problems and I have been through various therapies and tried various medications along the way. Nothing really ever helped but that could be because I hadn’t found the right combination so please don’t think that it won’t help you; the most...

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Can you eat chocolate with Crohn's?

Can you eat chocolate with Crohn's?

For many people with Crohn's, chocolate can irritate the the lining of their bowels. If in doubt, I'd say it's best to avoid it in my experience, especially if you aren't in remission (flaring). Chocolate usually contains caffeine as it's contained in cocoa beans. Foods rich in caffeine can often cause Crohn's to become aggravated. Compared to a standard cup of coffee...

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My J Pouch Story

My J Pouch Story

Hey! My name is Charlie, I am 28 and have been part of the Comfizz Team for over 10 years and this is my J-pouch story. I was diagnosed with Ulcerative Colitis (UC) in 2009 which resulted in me having my colon removed and having a temporary ileostomy (for about 18 months) I will not go into too much detail about this as I am here to speak about my J-pouch. I had three surgeries in total, first one to remove my colon, second one to create the J-pouch and the third one to connect everything together. It was not a difficult decision for me to agree to the J-pouch surgery. I was only 16 at the time and felt...

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Men's Health Week: Living with IBD and/or a stoma

Men's Health Week: Living with IBD and/or a stoma

Men's Health Week has nearly come to an end (14th - 20th June). Obviously from my blog posts here with Comfizz, you read a lot about how life is for me as a female with IBD and a stoma. It's widely known that women often seem to be a lot more forthcoming in talking our their struggles & experiences in general, let alone with something so personal, so it's been really nice to hear from Neil, Andy, Lee, Sean & Keith about their experiences. Thank you so much guys for being so open & sharing your stories & tips.

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My J Pouch Story

My J Pouch Story

Having a J Pouch can be the result of a bowel condition such as Colitis, Cancer or in my case Hirschsprungs Disease. If you know what a J Pouch is, it will probably be from either having one yourself or knowing someone that does. The surgery (restorative proctocolectomy), involves the removal of the entire colon and rectum. A J Pouch (ileo-anal pouch) is created from small intestine which is folded up along side itself giving it the ‘J’ shape. 

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Warmer weather and an ostomy

Warmer weather and an ostomy

If I am being completely honest, I am not the biggest lover of the summer I’m sure many people would be shocked at that as summer tends to be everyone’s favourite but I like autumn best! Sure, I like the longer days and the days out are far more enjoyable (or at least the kids whine less!) I am also more aware of my ileostomy as I wear less layers, I can’t say more dresses because I pretty much live in them all year round. No, it is because I notice my bag being damper from sweat, which has led to skin irritations and rashes and then the base plate being gummier. I generally find this is when it moves...

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Hirschsprungs Disease Awareness

Hirschsprungs Disease Awareness

When you think of reasons for a stoma bag what comes to mind? IBD, Crohn’s or Colitis are some of the first, but have you heard of Hirschsprungs Disease? Presenting in 1 in 5000 babies a year in the UK, this rare bowel disease is a birth defect that can occur with no family history of the disease. The nerve cells that line the intestines that are needed to move stool along into the rectum for toileting (known as ganglion cells), are not present. Your intestines should rhythmically move stool along in a wave-like contraction which when failing to do so cause tummy distention and constipation.

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