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We all know when we have an ostomy we run the risk of becoming easily fatigued due to a few different reasons; you may have thought to get your iron levels checked but what about your B12? This for ileostomates who have had more than one surgery on their small intestine could be the underlying cause for many issues. So having too little B12 in your system can cause it’s own type of anaemia (there are like 6 types! yeah it was news to me too!) where the red blood cells essentially don’t shrink to the right size therefore underdeveloped. B12 is essential for the making of red blood cells, keeping the nervous system healthy and releasing energy from the foods we...

I asked a close friend, confident and someone I highly respect to write a guest post for what it is like to advocate for people rather than just hear it from me! Read on to hear The Spoonie Mummy give her views. Advocate Noun; A person who publicly supports or recommends a particular cause or policy A person who puts a case on someone else’s behalf So now you know what an advocate is, what is it like to be one? My name is Natalie and I have dealt with chronic illness my whole life. Aged just fifteen months I was diagnosed with juvenile (rheumatoid) arthritis. Aged seven, I was also given a diagnosis of chronic iritis, a disease of the...

This week has been national invisible disabilities week and if you have an ostomy you automatically fall into that category as unless you lift your top up it isn’t visible and although you may not view it as a disability it is in fact one as the way you go to the toilet has been changed which can put you at a disadvantage. I believe that although it can be a pain in my redundant bum; I don’t feel that I am disabled as I have more of a life now than I did back then. However that is in no way to say that having a disability means that you can’t live “your best life” as the cool kids...

Did you know that our lovely Lorraine had written a book on the bowels, based on her professional background as a dietitian and her personal experiences with her son Samir who has Crohn’s disease. I thought it would be interesting to read from the point of view of someone who has suffered with Irritable Bowel Disease and even though I now have had my large bowel, rectum and some of my small intestine removed; would I be able to recommend it honestly to others before they have surgery as an option? I would like to point out now that although Lorraine provided me with the book to read, she has in no way influenced my opinion of this book and...

As you all know our diets with our ostomies are unique to us. Although diet usually only affects urostomates with colour and odour it can be a whole different ball game when it comes to colostomates and ileostomates. This means it is important to pay attention to what we eat and no that doesn’t just mean how much we chew; although that is very important in itself! You may have had your stoma only a few weeks or it may be years before you notice that certain foods can cause you issues. Now as a rule most but in no way all ostomates tend to not eat sweetcorn or mushrooms for the risk of blockages. Now if they are chopped...

Firstly a quick apology for this post being out late as between work and the kids my time has been limited oh and Button’s FIRST birthday; yes where has that time gone?! Being ill for a long time whether it is from childhood or something that has happened as an adult can take a major toll on how you view yourself or even make you feel like you have “lost” yourself. Many chronically sick adults grieve for the person they once were and although I can’t say that was the same for me as I was sick from being a child and it has pretty much been all I have ever known. I asked in a couple of groups on Facebook...

So if you have Inflammatory Bowel Disease you maybe aware that today (the 19th of May) it is World IBD Awareness Day. It is the official day (although most of us do it 24/7) to raise awareness of the ins and outs of our disease, how it affects our daily lives and that it isn’t just a pooping disease. This is the NHS definition of IBD is : Inflammatory bowel disease (IBD) is a term mainly used to describe two conditions: ulcerative colitis and Crohn’s disease. Ulcerative colitis and Crohn’s disease are long-term conditions that involve inflammation of the gut. Ulcerative colitis only affects the colon (large intestine). I myself suffered with Ulcerative Colitis from a very young age and have had two surgeries because of the disease and...