Learn with Comfizz

Today is world mental health day and I just want to say I am not okay. I don’t need to share with you pictures of me at my lowest because that was last year and I managed to write to you all every week and pretend everything is okay. That’s what we do isn’t it? Fake it till we make it? Social media is full of unhappy people trying to make other people think they are happy or that their life is perfect. Perfection is in the eye of the beholder. Take my life for example…. If you take out the fact I’m ill give or take always have been and will always be ill, the fact 00Steve is always...

One of your biggest questions before diagnosis may well be "what tests are done for Crohn's Disease?" It is important to understand, no matter how frustrating it may be, that some questions may take a considerable time to have answers to & some questions may not always have clear answers.

Tomorrow is World Ostomy Day and I just wanted to take a minute to talk about what it has been like for me over the last 4.5 years of having a stoma both the good, the bad and the ugly. This is by far my favourite image because falling pregnant with Button was just such an uncertainty especially after losing Bean just a few months before; knowing I could get to this stage in pregnancy was so amazing and also terrifying as anything can happen with pregnancy.  My ileostomy has given me so many opportunities that I couldn't have dreamed about such as: falling pregnant twice even if Bean didn't make it they gave us hope being able to run...

As you may have seen in last weeks post about Ostomy Surgery Appointments and how COVID had messed them about you may remember I said I would keep you updated on it. Well obviously my appointment hasn’t happened yet as it isn’t until December but it doesn’t mean it isn’t playing heavily on my mind. It isn’t something I like talking about being wary of surgery which in itself is entirely stupid as it shouldn’t matter if I am an advocate for positively (most of the time) living with an ostomy I am still human and I am allowed to worry and heck even be scared. No doubt some of it will be completely inconsequential  or just stupid vain stuff; but regardless...

So I have mentioned before that I may have to have further surgery on my ileostomy as it has retracted a fair bit and causes me a lot of hassle in my day to day like which is draining mentally and physically. This was originally mentioned back in November last year and was only briefly touched upon as due to surgical emergencies my appointment was running really late and I had to catch a bus. I have been ruminating on this since then and I was originally supposed to have had an appointment at the beginning of March to discuss everything. As we all know far too well the global pandemic of COVID – 19 happened and soon put a stop...

This week’s topic is on ostomy accessories. Have you ever heard of a flange or tape extender? Banana’s or boomerangs? They even go by the name of retention strips. No? Maybe? Or is it a hard and fast yes you have? Well this little bit of kit can help you in a multitude of tight spots whilst out and about and this post is here to tell you about how I have used them and other people have told me in the past! So what is a flange or tape extender? Well it is more often than not round and is a waterproof sealant or plaster if you will. So you pop them on top of your base plate to...

It is important to remember first & foremost with any health worry to get it checked out. If you have something abnormal, the best thing to do is to seek medical advice. You know your own body better than most. Some symptoms of Crohn’s Disease can also be symptoms of other things, from Ulcerative Colitis to intestinal blockages unrelated to chronic inflammation, so it is important to get the right medical diagnosis. Not everyone’s Inflammatory Bowel Disease (IBD) diagnosis is straight forward or quick, so generally the earlier you get something looked into the better. The tests and examinations to determine what it is and how to treat it can vary from different doctors & specialists, but there are some...

This post has an image of a naked stoma surrounded by output. I wouldn’t be doing my role as an advocate any good if I didn’t talk about leaks that stay contained. These happen to many ostomates and affect me probably the same as an “explosion” leak. Leaks either way they happen can be incredibly upsetting to the person experiencing it. The leaks that explode out from underneath the baseplate are ones you have to think fast before you need to wash more than just your clothes. The contained leaks are the slow burners as to speak. These ones are the ones that do the most damage to your skin. The ones that start with a sharp itch, but sometimes its...

Naked stoma in this post. Last week I spoke about some of the struggles I had been having with regards to my ileostomy and I try to talk about the good and the bad. Sometimes I hate my stoma. Actually scratch that I hate the things that make life with a stoma more difficult. Like hypermobile Ehlers Danlos Syndrome (hEDS) and eczema. – with the hypermobile Ehlers-Danlos Syndrome my stoma has started to fall in on its self; which is easier to deal with than a prolapse or at least I think so. But it allows leaks to happen as there is now a gap between my skin and the bag.– the eczema often ends up in me scratching my bag off....

Recently I have faced quite a few struggles with my ileostomy and they have taken quite the toll on my mental health; this comes after having my ostomy for over 4 years and having little to no issues prior to this. Some of the struggles I have been experiencing are: leaks – I do suffer with leaks but these have been happening far more often than usual sore peristomal skin itching increase in retraction swelling blockages soreness stoma cramping – this is probably my bowel kinking or becoming caught on adhesions and my goodness it is some of the most debilitating pain I have ever been in! To an extent I have experienced all of these before but not to this...