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Lifestyle

This can be quite a controversial topic for many ostomates (bowel ostomates anyway) whether you can eat nuts or not! I have in fact seen many heated debates on Facebook groups and have even had people arguing with me over the fact I can eat them! Which I have to admit I found absolutely laughable as our ostomies and the diseases that lead us to have them are just as individual as we are!  For as long as I can remember I have had struggles with foods either being trigger foods (yet that took 20 years for anyone to tell me what foods to pay attention too) intolerances, the odd allergy and now foods that affect either my output or...

*Trigger warning* naked stoma in post. September in the awareness calendar is Urology one of the biggies; yet not many people know much about our waterworks and related organs – often this includes me! What I love about the way awareness is raised in this instance is that people affected share black and white photos relating to their specific urological condition. So obviously urostomies are mentioned a lot as well as nephrostomies and catheters. Then there is the range of conditions from cancers to kidney failure. I think the choice of it being black and white makes it stand out from the crowd and I find myself pausing and reading the captions as I’m scrolling through social media. So what is urology and what...

So this is my first summer holidays where having both kids at home all the time isn’t the norm as Ra-Ra started school last September. It is also difficult for me because I have become more fatigued than normal due to mental health which is now affecting my ostomy. Being a chronically ill or mentally ill parent or even just a parent (I have plenty of healthy friends who struggle just as much) comes with it’s problems as well as the joy that kiddliwinks can bring. So I thought I would write a little post offering some solidarity. Children don’t amount value to things so they can often want things or do things that you simply just can’t afford at...

Like with most things in life moderation is definitely key and it is even more important in my mind after ostomy surgery. Not just in the healing period but for the rest of your life with an ostomy. I’m not trying to be preachy when I say don’t gorge yourself on certain food or drink but more from experience! When I started to feel myself again after my surgery and for the first time in a really long time I wasn’t in pain any more and food were no longer triggers I literally ate everything I could and as much of it as I could stomach. This wasn’t the best idea in hindsight but allowed me to pinpoint some very specific areas...

I remember being between a rock and a hard place after having my ileostomy on what to eat. I had next to no appetite and when I did I just wanted all the foods I was a bit worried about. For instance there wasn’t much information out there about eating vegetables with a stoma and I was worried I was going to have to change my diet! So I came up with this soup which I still have in my rotation; normally I wouldn’t share a soup in the summer but the weather has been a bit up and down so I didn’t think it was the end of the world! You know the seasonal veggie packs most supermarkets have?...

We all need electrolytes to keep our body in tip tip condition but did you know that having an ostomy specifically an ileostomy can affect the levels of electrolytes you have? In this post we will have a little look into what they are and what they do! Electrolytes are salts and minerals that hold a type of electricity more specifically positive and negative ions once they are dissolved in liquid; in your body this is your blood, sweat and urine. Electrolytes found in your body include: Sodium Potassium Chloride Calcium Magnesium Phosphate Bicarbonate They help your body do a variety of things such as ensuring your nerve endings and muscles function properly and keeping you hydrated – which those...

Have you ever thought about keeping a food diary? This can help with all sorts of issues you may be having when it comes to your output. This is often a really handy tool to keep when you first have your surgery to see how certain foods affect you and how this can change over time. However this is something you can start at anytime especially if you are finding your output is becoming unpredictable. Every food affects us all differently and you could be surprised at what you find out. You may have the need to visit a dietitian at some point for various reasons and keeping a food diary could really be beneficial in pinpointing areas of your...

So as you may know I have two beautiful children – Ra-Ra who was 2 when I had my ileostomy formed and Button who was born after. Both have their own interest in my bag and my stoma, for me it was quite interesting to pay attention to how they both act around it.Ra-Ra (5.5 years old) doesn’t really remember me being sick well as sick as I was before surgery but I remember 00Steve warned her about my tummy after surgery and that it would be sore. She used to bring her doctors bag to my appointments which was super cute especially when asked one day why she brought it she looked at the doctor and said straight faced...

We all experience urgency regardless if it is bladder and bowel; yet when we have surgery and an ostomy formed the urgency changes – it becomes “Oh no we need to empty” or “Oh I need to change my appliance!” Both can be upsetting if we are nowhere near a bathroom or somewhere private. I took to Twitter and asked people where the weirdest place they emptied or changed their appliance was and I thought it might be interesting for others to read. For me I was in Whitby and on a pleasure boat ride on the North Sea and all of a sudden I realised I needed to empty and quickly! I was also heavily pregnant with Button at...

Hopefully we are getting to that time of year again where the weather shows some promise of getting warmer and with that promise I wanted to talk again about hydration and just how important it is for all ostomates. For years we get told to drink more water or to ensure we are drinking enough fluids and whilst that is true as ostomates we have to be very careful about what we are drinking. I believe that it is something we should be aware of all year round to be honest because in winter we have the heating on and that can also affect our hydration, but we are generally speaking less active and notice it less. Then in the...