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In our blog you will find all kinds of information in relation to living with an ostomy. Tips, tricks and advice as well as other osto-mates experiences can be found within our blog.

Ostomates you need to follow on Instagram!

I have spoken a lot about how following social media pages of ostomates leading up to my surgery last Summer really helped me feel prepared for life with a stoma bag. For all the negativity that social media use is spoken of, the positives have more than outweighed them for myself. I started my account to share life as a mum with a baby ostomate, then not having a stoma personally. I used the platforms to connect with other parents in the same position, and look for practical advice where life experience from others provided answers that the medical world could not. Life experience is like a precious diamond. A small call for advice on a closed parents group on...

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Practical, emotional and financial support

In an ideal world you would leave hospital with your baby (poorly or not), and the leaflets fall into your lap about support whether it be practical, emotional or financial. For me a lot of what I am about to share had to be found as I went along. Unfortunately there are disadvantages according to where you live in the UK, as to what access you have to some of them. That is why I felt it so important to keep the conversation going in the hope others will find out this information much quicker than I did.    Carers allowance  This is a benefit available where you need to qualify according to a substantial list of criteria including being...

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A mothers mental health - the baby ostomate edition

I started blogging about having a little one with a stoma in 2016. I used Instagram as a platform to share my story in the hope of helping in the way many had for me by sharing the highs and the lows of having a baby with Hirschsprungs Disease. The bowel disease which affects 1 in 5000 babies a year in the UK, is caused by the nerve cells in the intestines needed to move stool along into the rectum for toileting (known as ganglion cells) not being present. This causes the body unable to remove its own waste, with the tummy starting to distend and very little to no poo being passed. Surgery is essential with bowel washouts required...

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