In our blog you will find all kinds of information in relation to living with an ostomy. Tips, tricks and advice as well as other osto-mates experiences can be found within our blog.

Running With A Stoma - The Race Edition

October was a very special time for me as I entered my first 10K race in Cardiff, South Wales. Whatever possessed me to do it you ask? How many of you who are reading this with a chronic illness have found they can’t be as active as they once were? For me it was like a light switch was flicked and I couldn’t do anything without being in pain anymore. Its debilitating, demoralising and can lead you down a dark path mentally with the mental health benefits you loose over night. My health journey has been quite the fair ground ride. Born with Hirschsprungs Disease, multiple surgeries, 3 stomas and having a child which has the same yet more severely,...

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World Ostomy Day 2021

It feels like it was only yesterday that my Instagram feed was glittered with beautiful photos of ostomates across the world, showing what World Ostomy Day means to them. For most of us who use the platform to document their journey living with an ostomy, its a daily occurrence, yet what is it about World Ostomy Day that makes it that much more special? I’ll share with you what it means to me. It means seeing everyone the same as me, rocking their bag, being raw and relatable, sharing the positives and the negatives. I feel seen. I feel my five year old ostomate is seen. That is the power of this day. It doesn’t make the content shared less...

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Holidaying as an ostomate

I’m back again guys following a lovely holiday with my family! We have always stayed in the UK since we had our baby ostomate now 5 years old, so current circumstances haven’t made any difference to us choosing to visit the beautiful Exmouth in Devon. Despite a few wet days at the start, parts of the UK entered a heatwave with temperatures entering late 20s/early 30s. This was my first holiday as an ostomate, but going on staycations for five years with my little one Jake meant you would think there wouldn’t be many surprises. I felt pretty organised with the only difference being myself to care for during bag leaks, hoping that Jakes stoma didn’t feel left out and...

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A mothers mental health - the baby ostomate edition

I started blogging about having a little one with a stoma in 2016. I used Instagram as a platform to share my story in the hope of helping in the way many had for me by sharing the highs and the lows of having a baby with Hirschsprungs Disease. The bowel disease which affects 1 in 5000 babies a year in the UK, is caused by the nerve cells in the intestines needed to move stool along into the rectum for toileting (known as ganglion cells) not being present. This causes the body unable to remove its own waste, with the tummy starting to distend and very little to no poo being passed. Surgery is essential with bowel washouts required...

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Navigating the world of after school activities with ALN/SEN children

As soon as your child expresses an interest in going to the same club as their best mate, the search begins to secure a taster session, work out how it will fit around your schedule, and if it is affordable. If your child doesn’t have an additional learning need or special need have you ever stopped to consider the risks in them doing it anyway? Starting such a thing takes a gigantic leap of faith as a parent. The protective instinct for a child you have watched go through multiple health issues and maybe surgeries burns strong, and part of you may not want them to enter such activities. Despite this, deep down you know that if they are at...

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Lectins Good or Bad For Your Bowels?

  What are lectins? Lectins are a type of protein found in many foods, but which are difficult to digest. One of the Lectins most people have heard of is Gluten. They are a kind of built-in defence system for plants to make themselves less appetising to animals that might eat them. Also, their seeds (due to the lectins in them making them indigestible) can pass through the animal or birds digestive tract unaffected, so the animal/bird can become a good means of dispersing the seeds far and wide. Some would term lectins as an “anti-nutrient” due to the attention they have received through popular media citing lectins as the cause of obesity, chronic inflammation, GI problems, leaky gut syndrome,...

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My J Pouch Story

Having a J Pouch can be the result of a bowel condition such as Colitis, Cancer or in my case Hirschsprungs Disease. If you know what a J Pouch is, it will probably be from either having one yourself or knowing someone that does. The surgery (restorative proctocolectomy), involves the removal of the entire colon and rectum. A J Pouch (ileo-anal pouch) is created from small intestine which is folded up along side itself giving it the ‘J’ shape. This creates a reservoir at the base of the ‘J’ for stool to collect. The bottom of it is attached to the edge of the anus, allowing the patient to release stool. This may need multiple surgeries, one to form the J...

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Hirschsprungs Disease Awareness

When you think of reasons for a stoma bag what comes to mind? IBD, Crohn’s or Colitis are some of the first, but have you heard of Hirschsprungs Disease? Presenting in 1 in 5000 babies a year in the UK, this rare bowel disease is a birth defect that can occur with no family history of the disease. The nerve cells that line the intestines that are needed to move stool along into the rectum for toileting (known as ganglion cells), are not present. Your intestines should rhythmically move stool along in a wave-like contraction which when failing to do so cause tummy distention and constipation. Some of the first tell tale signs that I knew my little boy had...

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Comfizz Story by co-founder Lorraine Alikhanizadeh BSC hons, PGDip SRD

“When I grow up, I want to do something that helps people” that is what I used to say to my young self. I did not know exactly what that would look like, never imagined it would be in the form of support wear, but here we are. It started with Sportswear The original Comfizz established 1998 was a sports and Leisure wear company, one of the first to bring ‘performance base layers’ to the UK. My husband, Nozar, ran the company initially from home with just one designer to help him. Then came the bowel disease The Comfizz you see today specialising in medical support wear emerged in 2004 when my dad Ernie, who had been battling with Ulcerative...

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World Mental Health Day 2020

Today is world mental health day and I just want to say I am not okay. I don’t need to share with you pictures of me at my lowest because that was last year and I managed to write to you all every week and pretend everything is okay. That’s what we do isn’t it? Fake it till we make it? Social media is full of unhappy people trying to make other people think they are happy or that their life is perfect. Perfection is in the eye of the beholder. Take my life for example…. If you take out the fact I’m ill give or take always have been and will always be ill, the fact 00Steve is always...

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