Learn with Comfizz
Family and Friends
Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!
I am rather a sociable being and love the bones of my friends. Having a poorly child will show you very quickly who the real ones are, the ones that reach out. The ones that have the difficult conversations then entertain your anxieties and dramatics in times of hardship. Child-care has always been an achilles heal for us with a child with both an ostomy and a feeding tube. Friends over the years have offered to learn how to change a stoma bag to be able to baby sit, but to put that responsibility onto someone is huge, and one that shouldn’t be taken lightly. From our perspective, we wouldn’t dream of asking someone who has a newborn, a younger...
On a walk the other week with my children’s dad I realised I needed to empty my stoma and we were in the middle of the moors and there were no bins for miles; for me to empty into a disposable bag and pop it in. So obviously I had to empty off the beaten track which is not my favourite thing to do but I was more shocked at what he said to me when I told him I needed to empty.
In an ideal world you would leave hospital with your baby (poorly or not), and the leaflets fall into your lap about support whether it be practical, emotional or financial. For me a lot of what I am about to share had to be found as I went along. Unfortunately there are disadvantages according to where you live in the UK, as to what access you have to some of them. That is why I felt it so important to keep the conversation going in the hope others will find out this information much quicker than I did.