In our blog you will find all kinds of information in relation to living with an ostomy. Tips, tricks and advice as well as other osto-mates experiences can be found within our blog.

World Ostomy Day 2021

It feels like it was only yesterday that my Instagram feed was glittered with beautiful photos of ostomates across the world, showing what World Ostomy Day means to them. For most of us who use the platform to document their journey living with an ostomy, its a daily occurrence, yet what is it about World Ostomy Day that makes it that much more special? I’ll share with you what it means to me. It means seeing everyone the same as me, rocking their bag, being raw and relatable, sharing the positives and the negatives. I feel seen. I feel my five year old ostomate is seen. That is the power of this day. It doesn’t make the content shared less...

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Holidaying as an ostomate

I’m back again guys following a lovely holiday with my family! We have always stayed in the UK since we had our baby ostomate now 5 years old, so current circumstances haven’t made any difference to us choosing to visit the beautiful Exmouth in Devon. Despite a few wet days at the start, parts of the UK entered a heatwave with temperatures entering late 20s/early 30s. This was my first holiday as an ostomate, but going on staycations for five years with my little one Jake meant you would think there wouldn’t be many surprises. I felt pretty organised with the only difference being myself to care for during bag leaks, hoping that Jakes stoma didn’t feel left out and...

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Practical, emotional and financial support

In an ideal world you would leave hospital with your baby (poorly or not), and the leaflets fall into your lap about support whether it be practical, emotional or financial. For me a lot of what I am about to share had to be found as I went along. Unfortunately there are disadvantages according to where you live in the UK, as to what access you have to some of them. That is why I felt it so important to keep the conversation going in the hope others will find out this information much quicker than I did.    Carers allowance  This is a benefit available where you need to qualify according to a substantial list of criteria including being...

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A mothers mental health - the baby ostomate edition

I started blogging about having a little one with a stoma in 2016. I used Instagram as a platform to share my story in the hope of helping in the way many had for me by sharing the highs and the lows of having a baby with Hirschsprungs Disease. The bowel disease which affects 1 in 5000 babies a year in the UK, is caused by the nerve cells in the intestines needed to move stool along into the rectum for toileting (known as ganglion cells) not being present. This causes the body unable to remove its own waste, with the tummy starting to distend and very little to no poo being passed. Surgery is essential with bowel washouts required...

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Navigating the world of after school activities with ALN/SEN children

As soon as your child expresses an interest in going to the same club as their best mate, the search begins to secure a taster session, work out how it will fit around your schedule, and if it is affordable. If your child doesn’t have an additional learning need or special need have you ever stopped to consider the risks in them doing it anyway? Starting such a thing takes a gigantic leap of faith as a parent. The protective instinct for a child you have watched go through multiple health issues and maybe surgeries burns strong, and part of you may not want them to enter such activities. Despite this, deep down you know that if they are at...

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Alex's Story

My name is Alex Bolton I'm 28. I've had Crohn's Disease since I was 14. I've had every biological medication there is. I chose to have an ileostomy in February 2019 then a sub colectomy in May 2020. After having my surgery in 2020 my Crohn's is gone, I know what good health is again. I wake up every day feeling fantastic; when you're used to feeling so poorly everyday and that's the norm, you forget what feeling good feels like and that's what my stoma "Norma" gave me, I wish I'd had the surgery 10 years ago 😊 My advice to anybody knew or existing ostomates is: Always wear your hernia belt whilst training at the gym or lifting...

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Stoma surgery expectations versus reality

I had the phone call a few weeks in advance for my ileostomy surgery last Summer during lockdown. We had to isolate as a family for 10 days and I was in no means mentally prepared. With Covid I didn’t expect to have the surgery anytime soon giving us all quite the shock! A few weeks is much more than some people get with many stomas formed as the result of an emergency surgery where patients wake up to find one without even know what a stoma is. Having a son with one already and having one as a baby temporarily meant I was no stranger to stomas.  I went in to surgery thinking I knew exactly what to expect...

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My J Pouch Story

Hey! My name is Charlie, I am 28 and have been part of the Comfizz Team for over 10 years and this is my J-pouch story. I was diagnosed with Ulcerative Colitis (UC) in 2009 which resulted in me having my colon removed and having a temporary ileostomy (for about 18 months) I will not go into too much detail about this as I am here to speak about my J-pouch. I had three surgeries in total, first one to remove my colon, second one to create the J-pouch and the third one to connect everything together. It was not a difficult decision for me to agree to the J-pouch surgery. I was only 16 at the time and felt...

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My J Pouch Story

Having a J Pouch can be the result of a bowel condition such as Colitis, Cancer or in my case Hirschsprungs Disease. If you know what a J Pouch is, it will probably be from either having one yourself or knowing someone that does. The surgery (restorative proctocolectomy), involves the removal of the entire colon and rectum. A J Pouch (ileo-anal pouch) is created from small intestine which is folded up along side itself giving it the ‘J’ shape. This creates a reservoir at the base of the ‘J’ for stool to collect. The bottom of it is attached to the edge of the anus, allowing the patient to release stool. This may need multiple surgeries, one to form the J...

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Hirschsprungs Disease Awareness

When you think of reasons for a stoma bag what comes to mind? IBD, Crohn’s or Colitis are some of the first, but have you heard of Hirschsprungs Disease? Presenting in 1 in 5000 babies a year in the UK, this rare bowel disease is a birth defect that can occur with no family history of the disease. The nerve cells that line the intestines that are needed to move stool along into the rectum for toileting (known as ganglion cells), are not present. Your intestines should rhythmically move stool along in a wave-like contraction which when failing to do so cause tummy distention and constipation. Some of the first tell tale signs that I knew my little boy had...

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