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Rach's Blogs

You are sore and perhaps bloated from surgery, not feeling quite like yourself. You may be relying on medication, and testing your food tolerances with your new accessory to see what you can and can’t tolerate. With all this in mind, what seemed as simple as going out to catch up with a friend over coffee can bring up many questions: What toilet facilities are there? Do I need a radar key if I need disabled toilet facilities? Will I need to empty my bag there? (You may not have done this in public yet) What happens if my bag leaks and needs changing? Can I have caffeine?

It is easy to assume when an ostomy is concerned that it is a messy, dirty situation for those involved! Unless you are not getting on with your ostomy appliance, that simply shouldn’t be the case at all (apart from a leak of course). Keeping your ostomy clean is not only best for you practically whilst you carry on with your day to day life, but as important as your daily hygiene. Your ostomy should be kept clean just as the rest of your body. Put simply, your ostomy is your anus that’s had a visit from Phil and Kirsty and relocated up north!

Accessibility is something that those with an invisible illness can find challenging. Whether it be accessing a building, funding, benefits or services online, for me it can feel exhausting that you have to prove it constantly. All too many times in the ostomy community, we see stories about ostomates who have been denied access to leisure facilities, or questioned for their use of disabled toilets. 

This month I was lucky enough to win a spa day competition! You know when you get tagged in a million competitions by certain friends, well I can tell you its totally worth it! Its something as an ostomate that can feel quite daunting going to a spa. You may have worries about what swimwear to use, what treatments you would feel comfortable having, and how much you need to disclose.

A new school year brings with it so much hope and promise. For me working, in education it has always felt more like New Years than New Years itself. It's such a milestone when your child progresses to the next academic year. Another Summer has passed making memories and letting them be kids for that much longer, in a world where it seems so keen on advancing at an exponential rate. I think we can all agree that the youth of today seem to be growing older at a far quicker rate than generations before them. 

Travelling feels like such a luxury after the last two years. I am eagerly awaiting my family holiday with the family and can’t wait for my toes to touch the sand and feel the salty sea air on my skin. Is there anything better? Fish and chips at the seaside, the kids playing outside care free, and that dreaded morning alarm set too silent. If you have kids it won’t make much different mind! But, just being able to turn it off feels so rebellious! Packing for a family is a task in itself. Inevitably something will get left, and if you are like me you will have to buy more sun-cream as you leave it at the beach or...

There are many possible reasons why a child may need a stoma. In this blog post, I look into some of those reasons. Without further ado, let's get started.  1. Hirschsprungs Disease - This reason had to be number 1 as it's what my brave little man inherited from myself, the reason for our ostomies. Born with non functioning colons we needed them completely removed along with 3cm of small intestine

It's been 2 years since my second stoma following age 2 1/2 when I had my first reversed as a baby. I went 30 years without one living with a J Pouch to find myself needing a second during the second lockdown. I count myself extremely lucky that I was given that surgery during the times we were living in.

Carers Week (6th-12th June 2022) was something that was never on my radar until I had a poorly baby. Truth be told, I never thought of myself as a carer, just a Mum until I was made aware that such thing as Carers allowance existed when said baby was almost 2!! 

When asked by Pelican to be an ambassador I had been sharing our story for 4 years already. I started my page on Instagram @gutsy.mum with the aim of reaching anyone that may stumble on my page and feel like they are the only ones. Being an ambassador has brought with it so many wonderful opportunities, and for that I am so grateful for. I have learnt some lessons along the way too.