Looking for ostomy education & related topics, helpful hints & real life experiences? Look no further! Browse our blog for support!

What is a flush stoma?

You may, or may have never, heard of this term. You may have also heard it being spoken about along with protruding or retracting stomas. A flush stoma is a stoma that sits level with the abdominal skin level. My experience with a flush stoma I have had issues with this, which was caused by a narrowing just before skin level, just inside my abdominal cavity a few centimeters behind my stoma. The narrowing was causing my stoma to be pulled back down to the skin level. A few things can cause a flush stoma such as surgical technique, a narrowing behind the stoma as I have just mentioned, weight gain/loss and it can also simply just occur over time...

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Bowel Kinking

Bowel kinking is a thing and I have been in the past hospitalised for it; for me personally it is the worst pain I have had since having my ileostomy formed 4 years ago. Don’t get me wrong I have had some nasty blockages especially the partials which come and go over a few days and I have had a particularly nasty stomach bug which also landed me in hospital! So for me to say these kinks are bad for me they are hella bad! I have no idea what kick starts them off as there have been different situations the one that lasted a week we have absolutely no idea and I had x-rays and a CT scan! It came in...

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How Comfizz help me to live with a stoma

Tuesday 19th May is World IBD Day. With this coming up, I thought it would be a great opportunity to talk about Comfizz and the impact they have made on my stoma journey. How I got my stoma At age 7 I was diagnosed with Crohn’s Disease. Crohn’s Disease can be anywhere from your mouth to your bum, but a lot of people typically have it in the small intestine. This was where it was diagnosed with me. Being scared as a young child of having scopes (endoscopy/colonoscopy & I still am now, I can just push myself through it), I didn’t undergo tests to keep an eye on things as frequently as you maybe would with an adult with bowel...

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Coronavirus Basic Information

So today I want to talk about the Coronavirus which is obviously causing mass hysteria and worry. As people with compromised immune systems we obviously do have a right to worry but is most of the information shared on social media just hype and bad case scenarios rather than being fully informative? I have spent a few days reading different articles and after some posts on Facebook I have seen that just seemed like pure scaremongering I felt that this post needed to be done. I want to highlight that although I work within the healthcare sector I am not a nurse or a doctor so I will cite sources as required. I would also like to state that any...

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Starting the year as I mean to go on!

Starting the year as I mean to go on but what exactly do I mean by that? Well it is obviously around my stoma but it is divided into three parts! They are: my ostomy supplies my diet my fitness They look like the beginnings of resolutions but I’m not thinking of them as such, so how do I plan on doing this? Firstly the stoma supplies – as we all know the NHS isn’t in exactly the best position to keep providing us with ostomy supplies on a free prescription we need to keep on top of what we have and how much we are ordering. Now this can be a bit of an awkward one as we try...

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Partial Blockages

Firstly I would like to apologise to all my lovely readers for being a day late but the sickness bug had hit the Simpson household! Firstly with Ra-Ra being sick, then my bag kept filling up – I managed to be safe from vomiting as I took some anti sickness after laying on the kitchen floor dry heaving at 5:30 in the morning. 00Steve then was sick and got migraines and the only person who seemed free of the bug was Button although he was sick a few days before. I have done a post before on what it is like being “normal” person sick when chronically sick. But now onto the partial blockages as I suffered that the night leading...

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Granulomas

Have you heard of the term ‘granuloma’? It is a common side effect of having an ostomy and can be easily dealt with by your stoma care nurse.  Basically a granuloma is your skin healing up on broken skin; they look like little red lumps around your stoma site and some can bleed or be uncomfortable. You can get them from friction caused by your bag or your peristomal skin being sore or damaged. Your stoma nurse can remove these with silver nitrate which can sting a bit but it shrinks them down to nothing over a short period of time. It is a very similar treatment to what they use for warts. I had a couple of granulomas when I...

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Hydration Revisited

Hopefully we are getting to that time of year again where the weather shows some promise of getting warmer and with that promise I wanted to talk again about hydration and just how important it is for all ostomates. For years we get told to drink more water or to ensure we are drinking enough fluids and whilst that is true as ostomates we have to be very careful about what we are drinking. I believe that it is something we should be aware of all year round to be honest because in winter we have the heating on and that can also affect our hydration, but we are generally speaking less active and notice it less. Then in the...

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Normal Person Sick

So this week’s post is a little late as my house was hit by the 24 hr tummy bug and along with a partial blockage I got struck by it twice! I wanted to talk about a little about my experiences with a smaller tummy bug rather than the gastroenteritis I suffered with last year! And how it all affected us differently. So it technically began on my birthday (26th) and my kiddies went to stay with their Grandma so that 00Steve and I could have the night to ourselves – not that we had anything planned in particular. His youngest brother still lives at home and his girlfriend often stays on the weekend. She ended up being the first person to...

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What Is In My Hospital Bag?

 hopefully won’t have to use this either ever again (wishful thinking) or very rarely but I have spent a good chunk of my life in and out of hospital and I have learnt a thing or two that was helpful for admissions. So I thought for those who may be new to chronic illness I would do a little post on what I do for those just in case moments. I always have a bag packed because if I am in a lot of pain I really don’t want to be faffing about packing a bag, plus since having my ostomy 00Steve doesn’t know what I use – now don’t get me wrong he would definitely grab me some bags but...

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